To empower and inspire individuals across the nation to actively
engage in caring for themselves and their loved ones while
contributing to science aimed at promoting health and finding cures.
To mobilize people to demand access to use and share their personal health data and work to influence public and private sector policies to establish this as a right – empowering personal health choices, while fueling research to advance understanding, prevention, treatment and care for all.
Empowering individuals and improving care
OUR PARTNER - THE WHITE HOUSE
PRECISION MEDICINE INITIATIVE
Building on President Obama’s announcement in his State of the Union Address, the Administration has unveiled details about the National Institute of Health's Precision Medicine Initiative. This bold new research is designed revolutionize how we improve health and treat disease. Launched with a $215 million investment in the President’s 2016 Budget, the Precision Medicine Initiative will pioneer a new model of patient-powered research that promises to accelerate biomedical discoveries and provide clinicians with new tools, knowledge, and therapies to select which treatments will work best for which patients.
Recognize the fundamental right of citizens to access and share personal health data
A national policy that prioritizes the rights and needs of individuals to access their personal health data and requires hospitals, companies and manufacturers to make all personal health data accessible, usable and shareable.
Make it easy for individuals to access and use their own health data
Encourage sharing data for research and to
obtain healthcare solutions
Saving lives. Stopping Waste. Catalyzing innovation.
Get My Data, a newly formed national 501(c)(3) and 501(c)(4), commits to creating a broad social movement raising awareness of the right of individuals to access and control their personal health data. The organization is founded on the principle that allowing people to access, use and share their own data will help individuals better manage their health care, provide new opportunities for services and therapies, and help researchers better understand, prevent, treat and cure disease – enabling everyone to live longer and live better. Get My Data will develop a highly visible program partnering with non-profit organizations, patients groups, health care leaders, pop culture champions, corporations, and policymakers to influence and change current industry standards and practices in order to help remove barriers to the access, use and sharing of personal health data to empower the rights and abilities of us - the American consumer to control and manage our health and to contribute to healthy outcomes for all.
IN THE MEDIA
JOIN OUR MOVEMENT
824 Moraga Drive, Suite 100
Los Angeles, CA 90049.
Tel : +1 310-476-3900
Email : firstname.lastname@example.org