GETMYDATA.ORG

OUR MISSION

 

To empower and inspire individuals across the nation to actively

engage in caring for themselves and their loved ones while

contributing to science aimed at promoting health and finding cures.

 

 

GETMYDATA.ORG

To mobilize people to demand access to use and share their personal health data and work to influence public and private sector policies to establish this as a right – empowering personal health choices, while fueling research to advance understanding, prevention, treatment and care for all.

 

MISDIAGNOSES & MISTREATMENTS

Generates 20 million life threatening errors every year

NO SYSTEMATIC ACCESS TO HEALTHCARE DATA

Results in patients AT RISK and powerless to insure the quality of their own care

Health data is everywhere, except where its needed.

PEOPLE ARE NOT ENGAGED

With no access and no understanding of their own health data

LACK OF

TRANSPARENCY

Pricing and success data for care is not available to the general public

NO SHARE-ABILITY

MEANS

NO MARKET LEVERAGE

As consumer expenditures

are not balanced by a right to monetize their data or easily obtain options for care

We all generate it, but few of us can access it when we need it. and, despite billions of taxpayer dollars invested to create data for care and research, most doctors and scientists can’t use it. It’s locked in databases that few can access, making care difficult and stopping important research in its tracks.

ENTRENCHED

POWERFUL

INTERESTS

With no incentive to improve, the status quo block opportunities to access and share data

THE OPPORTUNITY

Empowering individuals and improving care

EFFECTIVE & EFFICIENT

Precision medicine is more

effective and efficient and leads

to better outcomes for consumers

Research, pre-diagnosis & preventative medicine reduces cost of healthcare, & speeds implementation of new treatments

REDUCES TIME AND COSTS

ECONOMIC GROWTH AWAITS

Consumer Accessible Health Data is the

currency that engages people in their health

and drives economic opportunities

EXPANDS KNOWLEDGE

Aggregating individual healthcare data

expands knowledge and diagnostic success, helping us live longer and better

ABILITY TO SHARE EXISTS

Easy Share-ability of Health Data promotes the transactions that grow science, care options, & competition for better health solutions

POWER IN COLLABORATION

Creation of a true partnership between the patient, the community, the healthcare profession, the life sciences industry and government

OUR PARTNER - THE WHITE HOUSE

PRECISION MEDICINE INITIATIVE

Building on President Obama’s announcement in his State of the Union Address, the Administration has unveiled details about the  National Institute of Health's Precision Medicine Initiative. This bold new research is designed revolutionize how we improve health and treat disease. Launched with a $215 million investment in the President’s 2016 Budget, the Precision Medicine Initiative will pioneer a new model of patient-powered research that promises to accelerate biomedical discoveries and provide clinicians with new tools, knowledge, and therapies to select which treatments will work best for which patients.

Recognize the fundamental right of citizens to access and share personal health data

OUR GOALS

A national policy that prioritizes the rights and needs of individuals to access their personal health data and requires hospitals, companies and manufacturers to make all personal health data accessible, usable and shareable.

 

Make it easy for individuals to access and use their own health data

Encourage sharing data for research and to

obtain healthcare solutions

THE BENEFITS

Saving lives. Stopping Waste. Catalyzing innovation.

Gain a powerful tool in the quest for wellness and longevity – they ENGAGE

COMPANIES

Benefit through new products, new customers, and new relationships

RESEARCHERS

Accelerate their work for treatment

and cures

ENTREPRENEURS

Are empowered to develop new tools to prevent, understand and treat disease

GOVERNMENT

Benefits from a healthier population, with reduced costs and improved productivity

CARE PROVIDERS

Individual providers and institutions can provide better and more efficient care

INDIVIDUALS

ABOUT

Get My Data, a newly formed national 501(c)(3) and 501(c)(4), commits to creating a broad social movement raising awareness of the right of individuals to access and control their personal health data. The organization is founded on the principle that allowing people to access, use and share their own data will help individuals better manage their health care, provide new opportunities for services and therapies, and help researchers better understand, prevent, treat and cure disease – enabling everyone to live longer and live better. Get My Data will develop a highly visible program partnering with non-profit organizations, patients groups, health care leaders, pop culture champions, corporations, and policymakers to influence and change current industry standards and practices in order to help remove barriers to the  access, use and sharing of personal health data to empower the rights and abilities of us - the American consumer to control and manage our health and to contribute to healthy outcomes for all.

The View Of Digital Health From An 'Engaged Patient'

Using data from 2010, the Centers for Medicare and Medicaid (CMS) listed the following as the top five chronic health conditions within the Medicare beneficiary community.

Read More

Unpatients - why patients should own their medical data

For the benefits of digital medicine to be fully realized, we need not only to find a shared home for personal health data but also to give individuals the right to own them.

Read More

IN THE MEDIA

The Grim Reality of Digital Health Today

The digital health revolution has failed... so far. The industry that has grown up around it -- to cheer it on and promote its potential -- is thriving.

Read More

JOIN OUR MOVEMENT

GETMYDATA.ORG

824 Moraga Drive, Suite 100

Los Angeles, CA 90049.

 

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Tel  : +1 310-476-3900

Email : info@getmydata.org

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